As I’m writing this, it is the one year anniversary of getting Mr. T’s initial diagnosis for Apraxia of Speech. My little insomniac is still playing away in his room at 9:32 on a Friday night and I’m ready for bed. This journey so far has taught me so much and I pray that God continues to use it to shape me into a more gentle and patient spirit and a mother that truly brings glory to Him through the children He has entrusted to me.
So there’s this moment when your heart skips a beat and you literally can’t breathe when you are told your child is not “perfect”. Your wonderful, amazing, blessing from above is not what you were expecting. That picture you had in your head of your child and their life is suddenly shattered. The bicycle riding, the incredible sweet bedtime conversations with your 2 year old, the birthday parties, the carefree days and typical milestone expectations. Gone. Just. Like. That. The real beauty of the special needs community is that no matter what your child’s needs may be or how severe they are, we all know that any “diagnosis” causes the parent grief. Because it’s medical. We can’t change it, we can’t “fix” it, we can’t take it away and give that perfect picture back to our child or to our self.
We understand that it causes pain and anger and frustration. Be it Autism, Down Syndrome, Celiac, Apraxia, Diabetes, CP, APD or whatever set of initials, it means things must change. Diet, therapy appointments, doctor visits, learning an alternate form of communication, finding a support group for them and for you and dealing with a “new” normal for your family. It causes stressed emotions and relationships and it is downright lonely. Especially at first. After you go through the stages of grief and begin to settle in, you slowly begin to understand the power of yet.
A conjunction that holds the future. Yet is defined as: But at the same time; but nevertheless. My child can’t walk yet. My child can’t speak yet. My child can’t sit still yet. My child can’t do a jumping jack yet. Yet gives our children a freedom to keep reaching for goal after goal after goal. It gives us, the parents, a freedom from self imposed guilt, from the comparison trap, and a limitless supply of hope. Helen Keller is a wonderful example of what yet can do. Her parents didn’t give up, they believed she just hadn’t found the right help yet. Then they found Anne Sullivan. If it weren’t for yet, we would not know who Helen Keller was. Yet is a big deal and it is a word we should all use more!
In our journey, I have found yet to show up alongside grace (unmerited favor, or in plain speak a whole lotta forgiveness, understanding and patience) more often than not. Mr. T cannot manage zippers yet. Grace allows me to keep my cool when he insists on doing it himself anyway. Strangers cannot understand 80% of what Mr. T says yet. Grace allows me to show kindness and sometimes mercy when I have to explain his challenges and why he sometimes does what he does. All the yets we have already conquered give me so much hope. All that hope allows me to show grace. And that grace allows others to see that God can work amazing miracles in the most prodigal of us. And He can do it through our precious little ones, I think He often does. Special needs or not.
“Consider it pure joy, my brothers and sisters, whenever you face trials of many kinds, because you know that the testing of your faith produces perseverance. Let perseverance finish its work so that you may be mature and complete not lacking in anything.” James 1:2-4. God isn’t finished with me yet.I am learning how important perseverance really is.
If God is calling you to homeschool your child with special needs but you have a fear of not being able, remember that God isn’t finished with you yet, either. I’d love to connect through comments or email and help you in any way I can, even if it is just specific prayers for you and your sweet family. You are a blessing to me just by being here!

My 3.5yr old has not been “officially” diagnosed with aprixia a speech, yet, but iy is likely. Mind you he has a mild case of it from what I have been told. He was with speech therapy with a local company and now going through his elementary school. He said mama before dad a (by almost 9m) since m and n were easier to say. I have video of him on his speech teacher lap saying dad a for the first time. We still struggle with lots of lettets but some are getting better… He had a little bit of a feeding problem when he was born… Disorganized tongue was the official diagnosis… Along comes baby brother and he had the same disorganized tongue… Of course I thought here we go again… So far he has been the complete opposite! Already saying dad a not mama at 9m. We are working with the same therapy group just in case. Whole my guy has a mild case, its so frustrating when family goes just keepbworking with him, he will out grow it, hes just being lazy about it, you need to push him on saying Pongo (his stuffed penguin) instead of Mongo( how he says it) yes working with him helps but he sometimes just can not do it! So hard to just ignore those comments.
Very nice reminders.. the power of “Yet”
I have a 2yo son diagnosed with DS and had CHD but was operated open heart at 6mos. He has developmental delays and just recently walked before he turned 2 but we are on a journey with his feeding and has swallowing issues… sometime i feel exhausted on waiting on him to reach his milestones… but this aricle is a good reminder that he might not be there YET… nut i know he will arrive… in Jesus name.
Lara: Oh he sounds just like my son a few years ago! My 16yo’s list of diagnoses is long…. Developmental Delay, Mental Retardation (redacted), Apraxia of Speech (overcome!), Developmental Dyspraxia (still working with it), PDD-NOS (Autism Spectrum Disorder), late onset Stuttering (started @age 11). And the insomnia. At 18 mos he would stay awake until 1:00am. It took years for him to be able to go to sleep at a decent hour. He still tends to be a night owl but I don’t know too many teenagers who aren’t. His age finally caught up with his sleep patterns! God gives us these awesome, creative kiddos and every year that goes by he just keeps surprising me and blowing away the expectations others have for him. I love that. God is good! All the time!
This is so beautiful. Thank you for sharing!
So true. Having a positive attitude toward their diagnosis is a huge hand up for our kids. My kiddos have ADHD and dyslexia. Not the same as yours, however there are still challenges with both and being able to say that he can’t read…YET has helped both of us to stay positive. Thanks so much for putting this out there. More people need to hear this. 🙂
THank you. Your articles are what I needed this weekend as I learn about apraxia and come to turns with words like diability and special needs
Thank you, Patricia, for stopping by. I am so glad you found us! It is a tough thing to hear, but you will all be ok. We will pray for you and your family as you start this new journey! Blessings, Lara